The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Bridging the Gaps in GIST Care
GIST patients often face unequal care due to gaps in specialist access, biomarker testing, and education, underscoring the need to make expert, equitable treatment the standard rather than the exception.
Sarcoma – The Cancer No One Talks About
Sarcoma is a rare, often overlooked cancer that demands greater awareness, early specialist care, and stronger support so patients do not face the disease alone.
Patient of the Month for January – Felicia Arroy-Scheffler
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Felicia Arroy-Scheffler shares her story.
LRG Athletes Win for the GIST Community!
Five GIST advocates used their passion for sports in 2025 to fundraise through our LRG Athletes program raising awareness and funds for our GIST community.
Fundraisers Make an Big Impact this Season
The most meaningful fundraisers are those that are born of a passion - the WOLF events and our newest - Texas Hold'Em are two great examples.
Caregiver of the Month – December 2025: Jing Goldsmith
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Jing Goldsmith share her story.
Protecting Against Respiratory Illnesses
This winter season, take charge of your preventive health, and protect yourself against respiratory illness. Here are some ideas to stay healthy.
Hope for the Holidays 2025
Through our Hope for the Holidays campaign, listen to GIST patients who once felt alone and afraid, but found connection and support. Listen, learn and donate!
GLOBAL PARTNERS & AFFILIATIONS
