GIST News A Wave of Information By the LIFE RAFT GROUP

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August 2011

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  • Adjuvant Gleevec star of ASCO: What we learned by Jerry Call

    Results of the Scandinavian Sarcoma Group (SSG 18) adjuvant imatinib (Gleevec/Glivec) trial in high risk GIST were presented on June 5, during the Plenary Session of the 2011 American Society of Clinical Oncology conference (ASCO). The Plenary or “all members’ session” highlights “abstracts deemed to have the highest merit and greatest impact on oncology research and practice”.

  • First GIST tumor board convenes for Latin American docs by Sara Rothschild Alianza GIST, in partnership with the Life Raft Group, The Max Foundation, and Tecnológico de Monterrey hosted an event for Latin American physicians on Sunday June 5th at the American Society of Clinical Oncology conference (ASCO). The meeting drew physicians from many countries as they discussed best practices in Latin America for GIST....
  • Dutch Group marks one year anniversary of D-Day fundraising in Amsterdam by Christine Schaumburg

    Life Raft Group Research Team member, Dr. Brian Rubin and Life Raft Group’s Development Director, Christine Schaumburg, visited Amsterdam in June to recognize the one year anniversary of the launch of Project D-Day with Jeroen Pit and his colleagues who, combined, raised $2.1 Million for the D-Day project in a matter of weeks.

  • Case Study: challenges of long-term therapy in GIST by Jerry Call For 10 years Gleevec (at 600 mg) had been controlling his GIST, but Bob was struggling with the day-to-day side-effects of Gleevec. Most troubling were the muscle cramps, especially in the arms, that made it difficult to function effectively. Aching in the bones was also a problem; dealing with the side-effects of Gleevec had become a daily battle...
  • Trips & transitions: Where our specialists landed by Erin Kristoff

    GIST is a tricky disease. It’s important for patients to find the right doctor, one who understands the disease biology, treatment options and individualized treatment techniques like mutational and plasma testing. In most cases, we encourage our members to seek a GIST specialist. Recently, there have been a number of shifts in our close-knit GIST physician community and it’s making some people a little nervous.

  • ASCO 2011 Overview by Jim Hughes
  • Furthering research through the NIH Pediatric GIST clinic by Carly Smith The major topics addressed during the June NIH clinic included the interpretation of survival data stratified by clinical parameters, the implications of Succinate Dehydrogenase subunit B (SDHB) immunostaining, and how all of this information could help refine the current definition of pediatric GIST.
  • LRG arrives at ASCO in style! Passersby were able to enjoy our lollipop gardens and an abundance of information on supporting GIST patients.
  • Member uses fun in the sun to raise funds “He has raised nearly $1,000 so far to support Life Raft’s work and will be running in a marathon on October 30 to raise additional funds!”
  • Coming Soon: The 8th Annual LRG Poker Tournament in NYC!
  • Beloved wife, mother & GIST support leader passes at 68
  • Calendar