February 2012
- 2011 Executive Director's Report
- Genetic markers of progression in GISTs and their significance
- GIST warriors left behind a legacy of struggle & triumph
- One Life Rafter chooses a unique way to show support
- Congrats to BOD member Marietta Robinson on Obama nomination!
- LRG introduces GIST Day of Learning in Miami
- OCT-1 study shows promise for some CML patients: could there be benefit for GIST?
- First LRG jewelry party is a success
- Thank you for your support!
- GISTer’s daughter holds third annual ball for GIST
- Did You Know?
- Retired horse trainer seeks to “Harness a Cure” through Dover Downs fundraiser
- Swiss pathologist wins the 2011 GIST prize
- Did You See?
- Devoted wife, mother & grandmother passes
- Happy Cancer-versary to Anita Getler!
- Janice loved life & family
- Calendar
February 2010
More Life Fest 2010 updates!
Plans are moving right along for Life Fest 2010, and our gala event: GIST 2010: A Decade of Difference.
Registration is now open for the June 25-27 event and we have updated our Life Fest page so that you have a “onestop shop” for all of your Life Fest news at www.liferaftgroup.org/members_lifefest.html.
Here, you can register for Life Fest, view pictures, video and presentations from past Life Fests, download a nomination form for GIST Clinician of the Year and download materials for our new project: Tree of Life.
Register for Life Fest
Registration is now open and can be done at: www.liferafgroup.org/members_lifefestregistration.php
You can also book a hotel room under the special Life Raft Group rate of $129+ tax at the Hyatt Regency in Jersey City, where Life Fest will be held. Because this location is in such close proximity to New York City, we expect the hotel might sell out quickly. Please reserve your room as early as possible.
If reserving a room by phone:
Call 1-800-233-1234 and ask for a room for the Life Raft Group event at the Hyatt Regency in Jersey City. Tell the person assisting you that the code is G-LRAG.
If reserving a room online:
Go to http://www/. jerseycity.hyatt.com. jerseycity.hyatt.com. You can book it on the main page, as well as the “Rooms & Rates” page. Enter the code GLRAG in the box labeled “Group/ Corporate#
Clinician of the Year
On Saturday, June 26, 2010, the LRG will be giving out the GIST Clinician of the Year award... and you are going to help us choose the winner!
If you think that your doctor or nurse is the best of the bunch then we want to hear about it.
• Go to the Life Fest page and download and print a nomination form
• Tell us why your doctor should be the GIST Clinician of the Year and send it back by February 15
• The winning entry will be decided by a panel of GISTers and the winner will get a free trip to Life Fest where s/he can personally present the award in front of all the Life Fest attendees
“Tree of Life”
Your “Tree” will represent all the good things that have come into your life since your GIST diagnosis.
You hear many stories in the LRG about survivors getting to see a grandchild that they never thought they would, finally going on that European vacation with their spouse, or even simply getting to retirement. This is a chance to tell the world just what this time has meant to you.
If you are a loved one of someone who has passed on, don't feel as though you can't participate. Feel free to fill out a Tree on their behalf. Go to the Life Fest page to find out how to participate in our “Tree of Life” project, as well as view a sample completed “Tree” (pictured, left) and options to personalize your “Tree”.


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