February 2012
- 2011 Executive Director's Report
- Genetic markers of progression in GISTs and their significance
- GIST warriors left behind a legacy of struggle & triumph
- One Life Rafter chooses a unique way to show support
- Congrats to BOD member Marietta Robinson on Obama nomination!
- LRG introduces GIST Day of Learning in Miami
- OCT-1 study shows promise for some CML patients: could there be benefit for GIST?
- First LRG jewelry party is a success
- Thank you for your support!
- GISTer’s daughter holds third annual ball for GIST
- Did You Know?
- Retired horse trainer seeks to “Harness a Cure” through Dover Downs fundraiser
- Swiss pathologist wins the 2011 GIST prize
- Did You See?
- Devoted wife, mother & grandmother passes
- Happy Cancer-versary to Anita Getler!
- Janice loved life & family
- Calendar
April 2010
Young GISTers cross country lines to get together
My name is Stacey McAully and for those of you who dont know I was the first pediatric diagnosis of GISTs in Scotland. I have had 2 serious surgeries and was on Gleevec for 3 years. Now I am currently GIST free but have many pulmonary chondromas and an esophageal leiomyoma. My family recently got in contact with another GISTer in England and we met up for the first time.
We did some sight-seeing in Edinburgh and enjoyed eating out. Amongst all the fun we knew there was something that brought us all together. GISTs. We spoke about our experiences and what we all knew about this rare cancer. We got on exceptionally well and hope to meet up again soon.
We have also started to make plans to raise awareness of GISTs together in the UK. Hopefully some of our plans will work out and soon it will be as well known as other cancers. We hope to raise money for research.
Wednesday 7 April, 2010
It was really helpful meeting other parents who understand what we live with and was our pleasure to
Help them in any way we can - the positive side to this illness is the start of a 'beautiful friendship'
Wednesday 7 April, 2010