April 2012
- LRG mourns the loss of a great friend, Jeroen Pit
- GDOL Update: Speakers announced
- LRG Research Team meets in Leuven, Belgium: leaves with renewed energy & commitment to finding the cure for GIST
- Meet our new Montana local rep: Dirk Niebaum
- Cellular origin of GIST from the “good” cells’ perspective
- Alianza GIST meets in Miami
- And they’re off! 1st ‘Harness a Cure’ is a success
- NJ GIST gathering serves up support & smoothies
- NoCal GISTers meet!
- New report finds most hospital errors go unreported
- Happy Cancerversary to Brenda Bannon!
- Thomas G. Overley, 1952-2012: Toledo lawyer played guitar, sang in group
- Durham lived life with passion and pride
- Did You Hear? Did You Know?
- Arizona GISTers meet!
- Spunky Texan fought GIST bravely
- Calendar
Presented at the NIH Pediatric & Wildtype Clinic: Skin Toxicities in Targeted Therapies by Dr. Heidi H. Kong
Click here to view this presentation. You can view it on the webpage or download to your computer.
February 2011
6th NIH GIST clinic once again succesful
On January 19-21, 2011, the National Institutes of Health (NIH) held its sixth Pediatric and Wildtype GIST Clinic. This clinic focuses on a particular subset of GIST survivors that respond differently to current successful drug therapies for GIST. The Clinic serves to research Pediatric and Wild-type GIST as well as provide consultation for these patients from GIST experts who dedicate their time to travel to Bethesda, Md. from all over the country.
“I learned a lot and feel so much better having the NIH team as an additional resource, “said LRG member, Anne Pacifico.
Everyone with Pediatric or Wildtype GIST is encouraged to participate in future clinics. Patients are provided travel and lodging support to attend the clinic within the United States and partial support is provided for international participants. The next clinic is scheduled for June 2011.
You may visit the website at www.pediatricgist.cancer.gov. Dr. Su Young Kim, Pediatric GIST Clinic Coordinator, and his team can be reached at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .
0 Comments