Young Adult GIST Data

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Reports - All under 30 | Carney's Triad | Pediatric GIST (under 18) | 18 to 24 years old | 25 to 30 years old

Life Raft Group Data

GIST in young adults may be similar or quite different than pediatric GIST (under 18) as the disease tends to transition from the pediatric type to the adult type. GISTs from patients in this age range may have wild-type GIST (and be more similiar to pediatric GIST), or they may have GISTs with KIT or PDGRA mutations and be more similar to adult GISTs. The response to treatment and the natural course of the disease may vary considerably as well.

GIST in young adults age 25 to 30
Patient ID	Gender	Misdiagnosed Gist?	Orignial Cancer Diagnosis	Age at diagnosis	GIST Type	Mutation	Location of Primary Tumor at Diagnosis	Current age	Current Treatment
PG-129	F	FALSE		24.6	GIST		Stomach	30.7	Gleevec + Rapamycin
PG-123	F	TRUE	Other	25.1	GIST	Wildtype	Stomach	42.3	None
PG-134	M	TRUE	Other	26.0	GIST		Small Bowel	35.2	Sutent 50 mg
PG-150	F	FALSE		26.3	GIST		Small Bowel	30.0	Gleevec 800 mg
PG-152	M	TRUE	Other	26.6	GIST		Large Bowel	28.4	Gleevec 800 mg (responding well)
PG-141	F	FALSE		26.7	GIST		Small Bowel	28.8	None, NED
PG-142	F	FALSE		27.1	GIST	Kit, exon 9	Small Bowel	28.3	Gleevec 600 mg adjuvant
PG-154	M	FALSE		27.6	GIST		Small Bowel	30.6	None, took adjuvant Gleevec for almost 3 years
PG-145	M	FALSE		27.7	GIST		Stomach	27.9	Sutent
PG-146	M	FALSE		28.2	GIST		Stomach	30.2	None
PG-155	M	FALSE		28.2	GIST			36.9	None
PG-143	F	FALSE		28.5	GIST		Abdomen	31.0	None, NED
PG-153	F	FALSE		28.8	GIST		Small Bowel	33.1	none, had mets, now NED
PG-144	F	FALSE		28.9	GIST		Stomach	28.9	None, NED
PG-140	M	FALSE		29.1	GIST	Kit	Small Bowel	31.7	Deceased
PG-156	F	FALSE		29.7	GIST		Stomach	35.4	Sutent 37.5 mg 4/2 schedule
PG-151	F			28.3	GIST		Stomach		Deceased

This pediatric portion of the website is dedicated to the memory of Jonathan Montague

1. Gastrointestinal Stromal Tumors in Children and Young Adults.
A Clinicopathologic, Molecular, and Genomic Study of 15 Cases and Review of the Literature. J Pediatr Hematol Oncol Volume 27, Number 4, April 2005. Sonam Prakash, MD, Lisa Sarran, MS, Nicholas Socci, PhD, Ronald P. DeMatteo, MD, Jonathan Eisenstat, MD, Alba M. Greco, MD,
Robert G. Maki, MD, PhD,{ Leonard H. Wexler, MD,k Michael P. LaQuaglia, MD, Peter Besmer, PhD, and Cristina R. Antonescu, MD