Pediatric GIST Data

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Reports - All under 30 | Carney's Triad | Pediatric GIST (under 18) | 18 to 24 years old | 25 to 30 years old

Life Raft Group Data

GIST in Carney's Triad may have a different natural course than GISTs in young adults. The natural course may be more similar to pediatric GIST (under 18).

**Carney's Triad Patients (all ages)**
Patient ID	Gender	Misdiagnosed Gist?	Original Cancer Diagnosis	Age at diagnosis	GIST Type	Mutation	Location of Primary Tumor at Diagnosis	Current age	Current Treatment	Years Living w/GIST
PG-131	F	FALSE		11.2	Carney's Triad	Wildtype	Stomach	14.1	None	2.9
PG-106	F	FALSE		12.6	Carney's Triad	Wildtype	Stomach	18.7	None	6.1
PG-115	F	FALSE		14.4	Carney's Triad	Wildtype	Stomach	17.1	None, Mets debulked	2.6
PG-125	F	TRUE	LMS	14.9	Carney's Triad	Wildtype	Stomach	30.0	Gleevec 800 mg (long-term)	15.2
PG-109	F	TRUE		15.9	Carney's Triad	Wildtype	Stomach	21.0	None	5.1
PG-133	F	FALSE		28.9	Carney's Triad	Wildtype	Stomach	30.2	Sutent 31.5 mg (Alternates 37.5 & 25)	1.3
PG-148	F	FALSE		30.4	Carney's Triad		Stomach	34.4	?	4.0
PG-136	F	FALSE		34.1	Carney's Triad	Wildtype	Stomach	34.5	None, has chondromas	0.4

This pediatric portion of the website is dedicated to the memory of Jonathan Montague

1. Gastrointestinal Stromal Tumors in Children and Young Adults.
A Clinicopathologic, Molecular, and Genomic Study of 15 Cases and Review of the Literature. J Pediatr Hematol Oncol Volume 27, Number 4, April 2005. Sonam Prakash, MD, Lisa Sarran, MS, Nicholas Socci, PhD, Ronald P. DeMatteo, MD, Jonathan Eisenstat, MD, Alba M. Greco, MD,
Robert G. Maki, MD, PhD,{ Leonard H. Wexler, MD,k Michael P. LaQuaglia, MD, Peter Besmer, PhD, and Cristina R. Antonescu, MD