Pediatric GIST Data
Pediatric GIST overview | Pediatric GIST Data | Pediatric GIST FAQs | Radiation Risks for Pediatric Patients |
Pediatric GIST References/Links | Pediatric GIST Presentations |
NIH Pediatric GIST Clinic
To join the Pediatric GIST listserv, go to: Pediatric GIST listserv
Reports - All under 30 | Carney's Triad | Pediatric GIST (under 18) | 18 to 24 years old | 25 to 30 years old
Life Raft Group Data
GIST in patients diagnosed at a younger age behave very differently than GISTs in older patients. Even GISTs in young adults (18 to 30 years old) may behave differently than pediatric GIST (diagnosed under age 18)1.
|
Gender |
Misdiagnosed Gist? | Orignial Cancer Diagnosis | Age at diagnosis |
Current age |
Years w/GIST |
GIST Type | Mutation | Location of Primary Tumor at Diagnosis | Current Treatment |
| PG-120 | F |
TRUE | Other | 7.7 |
9.8 |
2.2 |
GIST | Wildtype | Stomach | None, NED |
| PG-103 | F |
FALSE | 8.2 |
12.0 |
3.8 |
GIST | Wildtype | Stomach | Sutent 25 mg 4/2 schedule | |
| PG-124 | F |
FALSE | 9.8 |
11.4 |
1.6 |
GIST | Stomach | None, NED | ||
| PG-110 | F |
FALSE | 10.0 |
15.4 |
5.4 |
GIST | Wildtype | Stomach | Sutent 37.5 mg 4/2 schedule | |
| PG-111 | F |
TRUE | LMS | 10.4 |
22.4 |
11.9 |
GIST | Wildtype | Stomach | None NED |
| PG-127 | F |
FALSE | 10.8 |
15.7 |
5.0 |
GIST | Stomach | None, 1 esphogeal tumor remaining | ||
| PG-107 | F |
TRUE | LMS | 12.4 |
24.7 |
12.3 |
GIST | Wildtype | Stomach | Gleevec |
| PG-121 | F |
TRUE | LMS | 12.8 |
31.6 |
18.8 |
GIST | Stomach | None? | |
| PG-104 | F |
FALSE | 13.3 |
17.7 |
4.5 |
GIST | Stomach | None, NED | ||
| PG-101 | F |
FALSE | 15.3 |
20.6 |
5.2 |
GIST | Stomach | Sutent 12.5 mg | ||
| PG-137 | M |
FALSE | 10.0 |
10.5 |
0.5 |
GIST | Unknown | None, NED | ||
| PG-112 | M |
FALSE | 12.3 |
17.1 |
4.8 |
GIST | Stomach | None, mets | ||
| PG-114 | M |
FALSE | 14.0 |
16.5 |
2.5 |
GIST | Stomach | Gleevec 600 mg, mets | ||
| PG-132 | M |
FALSE | 16.1 |
16.5 |
0.4 |
GIST | Wildtype | Stomach | Gleevec 500 mg | |
| PG-122 | M |
FALSE | 17.9 |
19.3 |
1.4 |
Familial | Kit, exon 11 | Small Bowel | None, NED |
1. Gastrointestinal Stromal Tumors
in Children and Young Adults.
A Clinicopathologic, Molecular, and Genomic Study
of 15 Cases and Review of the Literature. J Pediatr Hematol Oncol Volume 27, Number 4, April 2005. Sonam Prakash, MD, Lisa Sarran, MS, Nicholas Socci, PhD,
Ronald P. DeMatteo, MD, Jonathan Eisenstat, MD, Alba M. Greco, MD,
Robert G. Maki, MD, PhD,{ Leonard H. Wexler, MD,k Michael P. LaQuaglia, MD,
Peter Besmer, PhD, and Cristina R. Antonescu, MD
