Pediatric GIST Tissue Sample Protocol
Pediatric GIST overview | Pediatric GIST Data | Pediatric GIST FAQs | Radiation Risks for Pediatric Patients |
Pediatric GIST References/Links | Pediatric GIST Presentations |
NIH Pediatric GIST Clinic
To join the Pediatric GIST listserv, go to: Pediatric GIST listserv
1. Contact the hospital where your surgery was done and ask where the tissue samples are being held (in that hospital, in another hospital, in a lab)?
2. Contact the lab or hospital that has your samples and ask who you can speak to about having them sent out (usually the pathology department).
3. Explain that you are a patient with GIST and you are having mutation testing done. You will need paraffin samples of tissue from the tumor site and a non-tumor site and you do not want them to be stained. You would like you tissue samples sent to:
Dr. Cristina Antonescu
Department of Pathology
Memorial Sloan-Kettering Cancer Center
1275 York Ave
New York, NY 10021
Also tell them you want a note attached somewhere on the package that says: Memorial Sloan-Kettering/Life Raft Group/ Pediatric GIST Project
4. They might ask you to fill out a form (samples cannot be sent out unless the patient gives consent). They might fax or mail it to you.
5. Send the form back to the hospital or lab.
6. To ensure best results, ask how you can track your samples (Items shipped through FedEx can followed using a tracking number).
7. Dr. Antonescu will contact you with the results, if not, call Memorial Sloan-Kettering at 212-639-7900 for assistance in reaching her.
8. If there are any problems or questions, call or email Life Raft Administrative Assistant Erin Kristoff at (973) 837-9092 or ekristoff@liferaftgroup.org for help.
